PICS BY SILVIA CORRADIN / CATERS NEWS - (PICTURED: Here is Nicky shes determined to give him the best life possible) - A teen has spent his life cocooned in bandages to stop his fragile skin from tearing off - saving his life. Nicky Corradin, 19, from Lancaster in California, USA, wasnt expected to survive past his first birthday because his skin can blister and fall off at the slightest touch. He was diagnosed with most severe form of recessive dystrophic epidermolysis bullosa (RDEB), which affects one in 20,000 children. Whenever there is friction on Nickys skin, painful blisters will form that need to be lanced, drained and covered to prevent infection which can be lethal. To keep her son alive, mum-of-two Silvia, 52, wraps him up in a cocoon of bandages that protect him from damaging himself. She says the daily wrappings, which cover his arms, legs and waist have saved her sons life and act as vital aids in the recovery previous wounds. His condition is so bad that he can no longer walk without causing extensive damage to his delicate skin, which is compared to having the fragility of a butterfly wing. - SEE CATERS COPY
Primo Piano

“Ha la pelle delicata come ali di farfalla” e infezioni ovunque sul corpo, affetto da una malattia rara

 

Un ragazzo a carne viva: ogni giorno, la madre di Nicky Corradin deve fasciare suo figlio e ricoprirlo di bende, perché la sua farfalla: non può gicoare, non può sbattere, non ha una vita normale a causa di una malattia rara , l’epidermolisi bollosa distrofica. Nicky, 19 anni, deve essere coperto testa ai piedi ogni giorno per fermare la sua pelle che cade a pezzi o si infetta.

(Continua dopo la foto)

PICS BY SILVIA CORRADIN / CATERS NEWS - (PICTURED: Here is Nicky shes determined to give him the best life possible) - A teen has spent his life cocooned in bandages to stop his fragile skin from tearing off - saving his life. Nicky Corradin, 19, from Lancaster in California, USA, wasnt expected to survive past his first birthday because his skin can blister and fall off at the slightest touch. He was diagnosed with most severe form of recessive dystrophic epidermolysis bullosa (RDEB), which affects one in 20,000 children. Whenever there is friction on Nickys skin, painful blisters will form that need to be lanced, drained and covered to prevent infection which can be lethal. To keep her son alive, mum-of-two Silvia, 52, wraps him up in a cocoon of bandages that protect him from damaging himself. She says the daily wrappings, which cover his arms, legs and waist have saved her sons life and act as vital aids in the recovery previous wounds. His condition is so bad that he can no longer walk without causing extensive damage to his delicate skin, which is compared to having the fragility of a butterfly wing. - SEE CATERS COPY

Anche con il minimo di attrito, gli si formano dolorose vesciche che poi vanno medicate, fatte asciugare e coperte di nuovo per prevenire l’infezione, che ha portato a perdere alcune dita. La sua condizione ora è peggiorata, non può più camminare senza provocare danni estesi alla sua pelle delicata, che i medici equiparano alla sensibilità delle ali di una farfalla. Ma sua madre Silvia, 52 anni, è lì da una vita , che lo benda e lo medica da quando era bambino.

PICS BY SILVIA CORRADIN / CATERS NEWS - (PICTURED: GRAPHIC WARNING: Here is Nickys wounds, as you can see the skin tears completely off and leaves painful red sored beneath which can take up months to heal, some never heal properly aged 13-14) - A teen has spent his life cocooned in bandages to stop his fragile skin from tearing off - saving his life. Nicky Corradin, 19, from Lancaster in California, USA, wasnt expected to survive past his first birthday because his skin can blister and fall off at the slightest touch. He was diagnosed with most severe form of recessive dystrophic epidermolysis bullosa (RDEB), which affects one in 20,000 children. Whenever there is friction on Nickys skin, painful blisters will form that need to be lanced, drained and covered to prevent infection which can be lethal. To keep her son alive, mum-of-two Silvia, 52, wraps him up in a cocoon of bandages that protect him from damaging himself. She says the daily wrappings, which cover his arms, legs and waist have saved her sons life and act as vital aids in the recovery previous wounds. His condition is so bad that he can no longer walk without causing extensive damage to his delicate skin, which is compared to having the fragility of a butterfly wing. - SEE CATERS COPY

“Io resto comunque molto positivo – dice Nicky – giocare con il computer aiuta molto, perché smetto di pensare alla mia salute. E giocare con i miei amici e mio fratello aiuta veramente”.